Registered: Jun 2009
Location:
Posts: 8

does anybody have any experience with papillary kidney cancer?

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Registered: Jan 2007
Location: Canterbury
Posts: 102

Hello,

I haven't got experience of papillary cancer but as you haven't yet received an answer from this list, I wonder whether you have considered looking at the USA based kidney-onc list. Although USA based it has members from around the world, including people from this forum, and one of its greatest strengths is the number of members so there is a wealth of personal experience. The archives are also searchable so you could tap in papillary and I know that you would get a lot of hits as over the years I have seen a number of postings mentioning this. The list is free but you do have to register before you can post or search the archives. If you join I would recommend that you register for "Nomail" or digest as otherwise your email inbox will be flooded. I am "nomail" but regularly look at the postings so can choose the time I want to be reminded of kidney cancer.

http://listserv.acor.org/SCRIPTS/WA...E?A0=KIDNEY-ONC

Wishing you all the very best.

Love

Lynne

__________________
Stage 1b, grade 2 RCC clear cell. Diagnosed June 2006. Rad. neph. July 2006.

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Registered: Jun 2009
Location:
Posts: 8

Thankyou so much for your response.

I will have a look at the site that you have suggested.

take care & best wishes

Sarah

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Registered: Jul 2007
Location: Southampton
Posts: 42

Sara Hi

I cannot help you with the paillary ca question but someone sounding much like you in age etc sent me a private message a while ago that I tried to respond to - but it got returned as undeliverable. If you are Sara from Southampton please feel able to contact me again if you wish.

Good luck with your treatment. Px

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