There is an increasing amount of useful information about kidney cancer and its treatment on the Internet. You can immediately gain access to details of research developments, treatment innovations (including clinical trials), hospital facilities, kidney cancer specialists, conferences, pharmaceutical and biotechnology companies, medical journals, support organisations, government cancer policy and the experience of individual patients in the UK and other countries.
Naturally, there is concern about the reliability of medical information on the Internet. No one should take medical decisions on the basis of Internet information without considering very carefully the credentials of the source being used. Ideally, a patient should discuss his or her own Internet research with one or more qualified medical practitioners. It is particularly important to appreciate that there are different opinions about the most effective kidney cancer treatments, that no two kidney cancer patients are exactly the same, and that some treatments are still experimental.
The links which follow (arranged in alphabetical order) are included because KCUK regards them as reliable, trustworthy and informative. They have already been of help to many kidney cancer patients and carers, and in many cases they are used by medical professionals. The list will be updated regularly. If you want to recommend any other links to be added to the list, please submit details on the form below.
Australian Kidney Cancer On-line Support: http://www.akcos.org (AKCOS is an Australian support organisation for kidney cancer patients and their loved ones. Enquiries are welcome from UK residents with friends or families in Australia.)
Bristol Cancer Help Centre: http://www.bristolcancerhelp.org (This Centre, founded in 1980, has pioneered a holistic approach to cancer, integrating a range of complementary therapies, psychological support, spiritual healing, and nutritional and self-help techniques.)
British Medical Journal: http://www.bmj.com (This weekly publication often contains informative articles on cancer and its treatment, and on aspects of cancer policy in the UK. You can subscribe free of charge to its online service, which allows you to access all published articles directly.)
California Kidney Cancer Center: http://www.ckcc.org (This is a specialist clinic for the treatment of kidney cancer. The site contains useful information on new and advanced forms of therapy.)
Cancerbackup: http://www.cancerbackup.org.uk (Cancerbackup is a UK cancer charity providing information and support for cancer patients. It now has cancer information centres in a number of British NHS hospitals.)
CancerHelp UK: http://www.cancerhelp.org.uk (This cancer information service is provided by the Cancer Research Campaign's Institute for Cancer Studies at the University of Birmingham.)
Cancer News on the Net: http://www.cancernews.com (A US-based service providing numerous links to various sources of cancer information, including disease-specific sites, sites created by cancer patients, medical articles, details of clinical trials, and cancer support groups.)
Guide to Internet Resources for Cancer: http://www.ncl.ac.uk/~nchwww/guides (This guide, provided by the University of Newcastle, offers a list of over 3,000 UK, European and international cancer websites. You can search by geographical location, disease type, and treatment and medical specialities.)
It Starts Here: http://www.itstartshere.org (A website created by an American kidney cancer patient, Elizabeth Ann Resciniti, to document her own cancer journey and offer hope and support to others.)
Kidney Cancer Association: http://www.kidneycancerassociation.org (The KCA was formed in 1990 and is based in Evanston, Illinois, USA. It provides information to patients and physicians, promotes kidney cancer research, and acts as an advocate on behalf of patients and their families.)
Kidney Cancer Online Support Group (KIDNEY-ONC): http://www.acor.org (This link introduces you to several electronic mailing lists for specific cancers, including KIDNEY-ONC for kidney cancer, which now has over 500 members, mainly from the USA but increasingly from other countries, including the UK. The list's archives, going back to February 1997, are also accessible. Follow the instructions to subscribe to this group. The service is provided by the Association of Cancer Online Resources, Inc.)
Macmillan Cancer Relief: http://www.macmillan.org.uk (This UK charity offers specialist information, treatment and care to cancer patients and their families. It has a telephone helpline and can provide financial support to patients in need.)
Medlineplus (US National Library of Medicine): http://www.nlm.nih.gov/medlineplus/kidneycancer.html (This site provides a wealth of information about the kidneys, kidney cancer, treatment options, and relevant medical research, with further links to many other useful sites.)
National Cancer Institute: http://www.nci.nih.gov (The NCI is part of the USA's National Institute of Health. On this site you can find details of its ongoing research and treatment programmes, including those for kidney cancer. The NCI also provides public information on all aspects of cancer.)
National Electronic Library for Health: http://www.nhs.uk/nelh (This is a new initiative by the UK National Health Service. The aim is to provide health professionals and the public with access to the best current knowledge in all fields of medicine, including cancer.)
OnTumor.Com: http://www.ontumor.com/kidney.htm (This site, provided by CancerLinksUSA, lists many useful American links to information about kidney cancer and also has a patient message board.)
South East Cancer Help Centre: http://www.sechc.org.uk (This centre, located at Purley Cross, Croydon, Surrey, offers a range of complementary therapies and individual/group support to cancer patients. The emphasis is on improving quality of life.)
Steve Dunn's CancerGuide: http://cancerguide.org (Steve is a long-term US kidney cancer survivor who has done an incredible amount of research on the disease and its treatment. He also offers an excellent guide to doing your own cancer research.)
UKCCCR Register of Cancer Trials: http://www.cto.mrc.ac.uk/ukcccr (This site provides information concerning UK clinical trials in cancer, including kidney cancer, and also offers some general guidance on gaining admission to such trials.)
UKCCCR Renal Cancer Group: http://ukcccr.icnet.uk/committees/renal.html (This site gives details of the composition and activities of the renal cancer specialist group of the UK Co-ordinating Committee on Cancer Research. The committee consists of medical specialists in kidney cancer and is presently chaired by Professor Barry Hancock.)
UrologyChannel: http://www.urologychannel.com/kidneycancer (This is an American health community site with comprehensive information about kidney cancer and its treatment. It also provides a patient chatroom, message forum, and on-line discussion with medical professionals.)
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